Welcome to our brand new blog! Over the next few months we will be telling you all about our preparations for running the Leicester half marathon in aid of Amy and Friends. In this first post we want to tell you about the work of Amy and Friends and why we have chosen to raise money for them.
The charity Amy and Friends supports children suffering from Cockayne Syndrome (CS) and their families. Take@That first got involved with the charity back in 2013. We became friends with Amy herself after meeting her at one of our gigs. We knew nothing about Cockayne Syndrome then but have since learnt a lot about the work of this fantastic charity and the joy it brings to the children and their families.
CS is a rare, progressive and incurable genetic disorder. Sufferers are affected by having a small stature, microcephaly (a small head), developmental delay, premature ageing and other problems.
Currently there are approximately 300 children in the UK diagnosed or queried with CS and the average life expectancy of a child with CS is 12 years.
Amy and Friends have been working since 2007 to promote awareness of CS throughout the world and a better understanding of CS within the medical profession.
Amy and Friends raise money to:
Although CS is currently an incurable condition, the love and happiness these children bring to the world is amazing! The look of joy on the children’s faces when they see each other for potentially the first or last time is incredible.
Take@That were pleased to be asked to perform at a fundraising nights for Amy and Friends after meeting Amy three years ago. Since then we have arranged a couple of evenings ourselves and throughout the year we support them when and where we can. Because we tour up and down the country we are in the privileged position to be able to help raise awareness of CS and the work of the charity.
We are running the Leicester half marathon in aid of Amy and Friends on 15th October and we hope to raise as much money as possible to help them with their valuable work. Please sponsor us here! Any amount, no matter how small, will be really appreciated and will go directly towards the work of the charity.
Sponsor us here!
Next time: read how our Gavin (Jason Orange) has been preparing for the marathon!